Sunday, March 31, 2019

Handhewn hardwon Harmony for a Moment




4 Drawings arranged on Josh's Hospital Bed

Today I copied several William Morris designs
as I sat with Josh.
He was not talking much as he is watching
his fluid intake and talking dries his throat.

Earlier I had sat outside eating my lunch.
 I felt quite anxious about so many
things...money...Josh...money...

and then I looked up to see two beautiful cardinals
swooping in the trees...and farther up...
much farther up two eagles...circling and swooping
in the high heavens.

Somehow the beauty of the nearby whimsical
cardinals and the majestic eagles with
their great soaring vision carried me...

The birds in the William Morris designs
gave me wing as well...

There is something so comforting about drawing
symmetry.....and balance...
somehow through drawing these pieces
I felt more balanced and symetrical too
despite ongoing concerns about Josh.

Art overcomes in mysterious ways.


Coding . an experience at HCMC in the lobby





“Coding”
March 19, 2019
Hennepin Healthcare Lobby

…..a few days have passed… I still think about what happened in the lobby that afternoon…. questions circle around me….

         It was almost an ordinary day. I picked up my brother and brought him to the hospital for his regular INR and Diabetes appointments. After we arrived in the underground garage I temporarily lost my phone. A kind woman passing by called my phone and gave me a small red flashlight to search the dark corners of my car. I finally found my phone in the most obvious place, my purse. That flashlight came in handy later on as I searched for answers in dark unpredictable places.
My watercolor pads and pens were ready in my bag so I could draw while waiting for my brother during his appointment. The drawing I did turned out fairly benign after all. I crouched at the kids table and drew people coming and going on the skyway between the clinic and hospital pushing wheelchairs, cleaning units and baby carriages. All kinds of everyone. What I was meant to draw came later through the inner doors of perception.
Later as we played Scrabble on the curved and gracious balcony overlooking the lobby we heard the call “Medical Alert”. And there he was, just one floor down. A large man sprawled on the carpet near the front door as people arrived for their appointments. This man, whose name I do not know was being given CPR as a man pumped and pumped on his chest.
     I was a spectator, a human being and an artist, observing the soul of the hospital at work.  It went on for a very long time. We were all ripples in this pond of crisis, concern and empathy. Medical Expertise arrived with equipment, gurneys, heart defilibraters and official signatures on their jackets. The feeling was tense, concerned and connected with many people surrounding him. Separate and yet a part of this moment. Different people kept pumping on his chest. The circle widened as concern radiated out from him the way ripples form in water.  Here he was, like a stone dropped into a pond of crisis, concern and care. Such a deeply private and public moment. We watched, prayed, hoped and wondered. One young man looked on, weeping, so moved he could not speak. The pumping continued. Would he make it?


 The CPR procedure was real, harsh and at times violent. It was not easy and questions remain. I don’t know if he survived
 I recalled the many times of being here at the hospital with my husband through the long winter, cold, and unyielding icy alleys. Through it all until this moment when my heart broke open the way you’d crack an egg, so moved once again by the way the hospital comes together for people. “We are Here For Life” Yes.
 I watched from the balcony steps. Bearing witness to the soul and expertise of this hospital staff holding onto this man’s life held in the balance of life and death. Crying in this most public and private of moments. Would he make it? We were helpless watching those with medical expertise continue to pump and try to kindle his life spark again
After a while he was loaded onto a gurney and wheeled out to a waiting ambulance which would take him to eager caring hands in ER.
Lingering we hesitated before returning to the routines of care and work. Later, life in the lobby returned to normal. But an air of bewilderment hung over the place.  I swear the spot where he had laid was illuminated by those crucial moments we’d bore witness to
I kept wondering how to try to draw it all.
How did I  draw hope, tears, expert care and the moist eyes of the woman who made the call? How do I draw tension and many hands?
How do I draw the deep eyes of the doctor I spoke to afterwards?
How do I draw feeling helpless as divine and human hands held this man and everyone tried their best in the face of the great mystery?
Hours later I watch the sun setting.
Snow melts and birds sing.
Spring is here!
I look into the open orange tulips perceiving their dark brown stamens and wander among my wonderings.
Who was he?
Did he make it?
Is he alive or dead?
Will his eyes open to another day?

the next day I am sitting in the Wound Clinic waiting room directly across the bay from the ambulance bay..the unknown man from the lobby remains with me. I wish I could ask someone who would give me an answer. I gaze at the ambulances. This is where they would have brought him yesterday. The ambulances have arrived many times. From time to time I have arrived here too, with my husband in various moments of crisis

days later my busy life resumes…. questions and wanderings
among wonderings remain…I take that tiny flashlight given to me in the darkness of the underground parking garage and search out answers as best I can.

days.....many days later….. an answer emerges…..he died that day….



Thursday, March 28, 2019

Notes from the Inner Labyrinth of Caregiving March 26



Notes from the Inner Labyrinth of Caregiving.
                                   March 26, 2019
       Finally, it is a sunny day in south Minneapolis. The impassable snow banks are Gone and the alley is damp, free of
the ice ruts that made life impossible.

I do my ordinary thing in the morning. Feed the cats and then I get up very late. It’s how I cope. Deep rest late into the morning. I make coffee and have some kind of breakfast.

It is a sunny day in south Minneapolis after the longest cruelest winter. But that is almost forgotten. My rear view mirror was broken off two weeks ago as I tried to navigate the ruts in the alley. So I try not to look back and just look forward, but looking either way is hard.

Looking back I see that icy drive to HCMC on February 8th.
You haven’t been home since, but despite all these setbacks you orchestrate and plan our garden. The Gurney garden order is on its way. I make notes and hope I can make it as beautiful as you see it as you are on 2 liters of oxygen in your wheelchair at the nursing home.

Looking ahead I wonder. I asked one doctor today what your prognosis was and is. He said for this one thing you could last a while. But then there is that other condition and the other and there were labs today.

Earlier this afternoon I got to the nursing home in time to talk to the nurse and gather up the notes. I joked with nurse that I have a nursing license. Well, let’s be specific about this. I have an “Artistic” nursing license that gives me the ability to draw in All Kinds of Medical Situations. And I do. Nurse Nita can deal with Medical Crisis and still kick up her heels and Dance!

You looked good in the black vest I brought you, but you were agitated and rocking back and forth in pain. My heart broke. Again. Feeling helpless.

I wheeled you out to the lobby and soon our driver came. A guy with gold watches loaded you up and I listened to the music playing all the way to HCMC. Groups from the 70’s. I felt the rhythm. We got to the appointment early. I went to get coffee and a lemon poppyseed muffin. I saw a woman I’d met a week ago when there was a medical crisis in the lobby. I read her the essay about that in which she is mentioned. When I am there again I will give her a copy. Then I saw Wenda and gave her a bill related to my work at the hospital. That is a long story.

I made it back up to the Pain Clinic and finally you were called in. We switched oxygen lines and I made things as pleasant as I could. That’s what I do. Smooth things out draw and take notes. We were running late for our second appointment, but finally the doctor came and it was a good visit. There in the Pain Clinic when you were in such pain after all.

We made it to the Pulmonary Clinic and there we were waiting again. We conferred with the doctor. I took notes and drew. He made adjustments to your meds cycle.

Somewhere along the way. Maybe it was when I spoke to the doctor about your prognosis that I felt the wheels of caregiving shift. Maybe it was getting on My Chart. Maybe it was the way you always ground me. Maybe it was just the realization that you are tired of all this and are so worn down. Maybe it was the realization that maybe in a year I won’t have you after all. There will be no more labs, no more shaking with pain, no more transport rides to the hospital and most certainly no more harrowing ambulance rides. No more appointments.
The wheels of change shifted into place. I looked at how tired with pain you are. I felt so proud I finally got My Chart in place. I looked over your sheets of labs. And along the way I sighed. Only the Chopin piano piece playing can convey these feelings.


I rushed you to the Lab, but did not sign you in. I thought you were signed in. I rushed back to get my stuff and ended up drawing and talking to the nurse. It was a significant moment.
He told me how he felt “the song again.”as a nurse.
I ran back to the Lab area and you were waiting. There were several eternities this afternoon and waiting to check you into the Lab was one. I got kind of pissy, but was always kind and loving with the woman I know so well and have drawn.





Blood Draw Area…… More Labs for You
We got back to the nursing home. You had supper. I wheeled you back to your room and took your meds. Wonderful Hafsa looked after you as always
The soothing music is playing now. I had a glass of Italian wine. It goes down easy after all. Looking back on the day I see that we made it. I know now I will look back on this time with a rueful poignant feeling remembering how sad music played almost every time I drove to see you at the nursing home.

I will remember how earlier the driver and I talked about old Minneapolis and what has vanished. I will remember how when we got back I wheeled you right into the bathroom and got you to dinner on time. You had two bowls of chili. Your appetite is always good.  I will remember How I rolled you back to the room How I wiped you butt. How in a year I might not be able to do that.  How I laid there listening to music and then how I left after kissing you good bye. How you said you just wanted to get through all this. How I left. How I came home and walked on the dry pavement that I swept free of traction grit earlier today. How the snow is gone. How the cats welcomed me. How you are not here. How things change. How I am here now remembering the day and you are not here.
It was a sunny day in south Minneapolis but you are not here.